Friedreich’s ataxia

Mandy Burris, 21, of Osceola, Mo., suffers from Friedreich’s ataxia (FA), a genetic, progressive disease that causes loss of coordination and balance. In some cases, it can cause heart and speech problems. Mandy doesn’t have a sense of balance and leans on someone or something to get around, and she often feels fatigued.

There is currently no cure for FA. Stem cell research is the most promising development in reversing damage and regenerating lost capabilities, according to the Friedrich’s Ataxia Research Alliance. Mandy takes vitamins, but this doesn’t make her feel 100 percent. She has good days and bad days. The good news is that Mandy doesn’t suffer from many of the disease’s symptoms. FA, however, is a slow progressing disease, and more severe symptoms can strike many years after diagnosis.

Mandy plans to travel to China to receive stem cell treatment. A British woman became the first person to ever receive stem cell treatment for FA in 2005 (BBC article here). Stem cells from the umbilical cords of babies were injected into her blood. Although few media outlets followed the treatment, she did report improvements, including feeling more energetic.

Treatments cost roughly $50,000, and Mandy plans to travel to China in the spring of 2008. This blog will entail Mandy’s experience with FA, fundraising efforts and stem cell treatments.

To donate, stop by any Hawthorn Bank in Missouri, or send a check under “Mandy’s Mission” to Hawthorn Bank — Downtown Banking Center; 102 N. 2nd St.;Clinton, MO 64735.

–Trevor Davis