Comments for Friedreich's ataxia http://mandysmission.wordpress.com One woman's experience with possible treatment Sat, 25 Apr 2009 07:58:12 +0000 http://wordpress.com/ hourly 1 Comment on Mandy seeks treatment for FA by meg http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-27 meg Sat, 25 Apr 2009 07:58:12 +0000 http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-27 gud going!I also have FA and thinking bout goin for the treatment also lemmeknow is there any improvement gud going!I also have FA and thinking bout goin for the treatment also
lemmeknow is there any improvement

]]> Comment on Mandy seeks treatment for FA by Brandon http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-26 Brandon Sun, 21 Dec 2008 00:01:08 +0000 http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-26 How's it goin girl..seeing hows the treatment helping...I also have FA and thinking bout goin for the treatment also...but just gathering so info on stem cells and the results...send me email on it cya girl How’s it goin girl..seeing hows the treatment helping…I also have FA and thinking bout goin for the treatment also…but just gathering so info on stem cells and the results…send me email on it

cya girl

]]> Comment on Mandy seeks treatment for FA by Brandon http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-25 Brandon Sat, 20 Dec 2008 22:49:31 +0000 http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-25 hey girl keep it strong...I've also got FA...i was diagnosed with it when i was 8 and ended up in a wheelchair on my 17th b-day...i didnt get real bad till i was 13 but i refused to be in a wheelchair but had to be 4 years ltr...so now im 30 and i been doin some research and i came across info bout (stem cells)and would like to here how the treatment is goin drop me a line and fill me in.................email me if u like possible we can become myspace buds. cya girl hey girl keep it strong…I’ve also got FA…i was diagnosed with it when i was 8 and ended up in a wheelchair on my 17th b-day…i didnt get real bad till i was 13 but i refused to be in a wheelchair but had to be 4 years ltr…so now im 30 and i been doin some research and i came across info bout (stem cells)and would like to here how the treatment is goin drop me a line and fill me in……………..email me if u like possible we can become myspace buds.

cya girl

]]> Comment on Mandy seeks treatment for FA by Erin Kottwitz http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-24 Erin Kottwitz Tue, 02 Dec 2008 12:07:24 +0000 http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-24 Mandy you are awesome, keep up the hard work and yell at everyone on every bus you get on!!! LOL Mandy you are awesome, keep up the hard work and yell at everyone on every bus you get on!!! LOL

]]> Comment on About us by patty hodde http://mandysmission.wordpress.com/about/#comment-21 patty hodde Sun, 28 Sep 2008 21:40:10 +0000 #comment-21 hi, my godson joey also has FA. here , we would like to correspond with mandy about her progress. we are currently collecting donations locally so that we can get him to China for treatments...any suggestions and feed back would be greatly appreciated....patty . joey pomykals address... PO Box 944 LaGrange, TX 78945 phone 979/702/0357 or patty hodde phone 979/289/3756 joeys moms e-mail...Pudder1021@icqmail.com hi, my godson joey also has FA. here , we would like to correspond with mandy about her progress. we are currently collecting donations locally so that we can get him to China for treatments…any suggestions and feed back would be greatly appreciated….patty . joey pomykals address… PO Box 944 LaGrange, TX 78945 phone 979/702/0357 or patty hodde phone 979/289/3756 joeys moms e-mail…Pudder1021@icqmail.com

]]> Comment on Back in the USA and seeing improvements by Jessie Fend http://mandysmission.wordpress.com/2008/06/28/back-in-the-usa-and-seeing-improvements/#comment-18 Jessie Fend Fri, 01 Aug 2008 00:58:46 +0000 http://mandysmission.wordpress.com/?p=19#comment-18 HEY!!!I love the website and update! It was really great to get to know you and your mom. I am so happy for you with your improvements! You really worked hard over there, and I'm sure you're still bustin your behind back in the states as well! Cody is doing great! He continues to see and learn all his colors!!! He brings everything within 2 inches of his face and just stares at it in auh!!!! We are probably looking to go back next year again. I hope all is well with you, and tell your mom we said hello! :) HEY!!!I love the website and update! It was really great to get to know you and your mom. I am so happy for you with your improvements! You really worked hard over there, and I’m sure you’re still bustin your behind back in the states as well! Cody is doing great! He continues to see and learn all his colors!!! He brings everything within 2 inches of his face and just stares at it in auh!!!! We are probably looking to go back next year again. I hope all is well with you, and tell your mom we said hello! :)

]]> Comment on Treatment update by Mari Chandler http://mandysmission.wordpress.com/2008/05/17/treatment-update/#comment-15 Mari Chandler Tue, 27 May 2008 20:34:31 +0000 http://mandysmission.wordpress.com/?p=18#comment-15 I am so happy to hear that things are going good for you. I have been thinking about you everyday ... and keeping you in my prayers. y Church has agreed to allow us use their tax id for Tyson's fundraising efforts to get to China for his FA. Our attorney is establishing a foundation and band account. My hope is that we are as fortunate as you were with your fundraising efforts. I will continue to check your web site to follow your progress. Look forward to your return to the states. Mari Chandler I am so happy to hear that things are going good for you. I have been thinking about you everyday … and keeping you in my prayers.

y Church has agreed to allow us use their tax id for Tyson’s fundraising efforts to get to China for his FA. Our attorney is establishing a foundation and band account. My hope is that we are as fortunate as you were with your fundraising efforts.

I will continue to check your web site to follow your progress. Look forward to your return to the states.

Mari Chandler

]]> Comment on Earthquake not felt by Mari Chandler http://mandysmission.wordpress.com/2008/05/13/earthquake-not-felt/#comment-14 Mari Chandler Tue, 27 May 2008 20:30:31 +0000 http://mandysmission.wordpress.com/?p=17#comment-14 I am so relieved to hear this ... I have been wondering if they were ok! Thank God! Mari Chandler I am so relieved to hear this … I have been wondering if they were ok! Thank God!

Mari Chandler

]]> Comment on Treatment update by RV http://mandysmission.wordpress.com/2008/05/17/treatment-update/#comment-13 RV Fri, 23 May 2008 17:50:37 +0000 http://mandysmission.wordpress.com/?p=18#comment-13 Hi, I was in China during Jan 2008. I have Spino Cerebellar Ataxia - Type 1. I went through the stem cell treatment. My experiences are noted in my blog - http://stemcellataxia.blogspot.com/. Wish you all the very best. RV (in Canada) Hi, I was in China during Jan 2008. I have Spino Cerebellar Ataxia – Type 1. I went through the stem cell treatment. My experiences are noted in my blog – http://stemcellataxia.blogspot.com/. Wish you all the very best.
RV (in Canada)

]]> Comment on Mandy seeks treatment for FA by lydia norlund http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-8 lydia norlund Thu, 15 May 2008 05:39:57 +0000 http://mandysmission.wordpress.com/2007/12/10/mandy-seeks-treatment-for-fa/#comment-8 is mandy in china..has she left yet? sue norlund is mandy in china..has she left yet? sue norlund

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